Acceptance

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eccentric
joined 25 Jan 2008
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Posted by eccentric, 11:51 26 January 2008

Hello. I was wondering if anyone had any views on acceptance of their limitations during the winter. It's been 3 years since I first identified a seasonal pattern to my issues and I am learning to take into account a 'slowdown' period into my lifestyle. I have acceptance that it is sometimes easier to change my life around the symptoms rather than try to change how I *should* be feeling everyday to accommodate the pressures of keeping up with other people around me, many of whom have no problems during the winter. I have now changed my job and have some degree of flexibility in the hours I work and the amount of work I take on. This is difficult financially, when I feel unable to work more than 3 or 4 hours a day but I feel it is more acceptable than battling through and taking on more pressure than my body can cope with during the darker months of the year. I also feel more 'human' as I'm reacting to the needs of my body, rather than the other way around. Does this make any sense?
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 12:01 26 January 2008

Absolutely it makes sense and almost describes my situation in that I am slowly learning my limitations in the winter. I'm gradually changing how I work in that I am keeping my job that takes me out of the house to two days, whilst retraining and working for myself at home, as I find my home environment easier. Up to a point I can choose when to see clients. They rarely want to come at my worst times of day in any case. At the moment I'm not sure how this will work out, but hoping I can sort it out. I don't push myself during January at all, as this is usually my worst month. If I could choose never to have the Christmas celebration in my home I think that would suit me just fine, unless I could just be here with my dh, dd, ds. I'm really quite content with someone else taking the strain at that time of year.

Having said that, we were 15 here on Christmas day for sit down meal and 11/13 for meals on Boxing Day. I did New Year for friends, so that was 13 that night as well. Off the hook for a couple of years I hope.

Sorry, rambling.
Nickyj14
Nickyj14
joined 10 Nov 2007
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Posted by Nickyj14, 16:15 26 January 2008

Yes eccentric, I think that makes a lot of sense. I am trying to slow down this winter and accept that I want to hibernate rather than socialise, without feeling guilty about it.
Suzie
Suzie
joined 26 Jan 2007
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Posted by Suzie, 17:53 26 January 2008

Acceptance is one of the most important ways of dealing with this illness. I used to beat myself up about not being able to "cope" during the winter. I used to feel like I had burnt out and was physically and emotionally wiped out. Now I set myself limitations and like yourself try to only work approx 4 hours per day. That way I can maintain a bit of a normal life at home as well. Also if I need a sleep which I usually do I can have one late afternoon which gets me through till bedtime.
OBE
OBE
joined 12 Sep 2007
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Posted by OBE, 18:17 26 January 2008

Totally agree, acceptance is the only way to survive the onslaught. But this takes time and involves those around you too. Once they can see you're not a hypochondriac or an attention seeker they leave you to it without too much fuss or criticism which takes years to build up to.
Slightly connected and from a personal perspective I have to really keep my self criticism in check at this time of year, a little is good but I find it creeps up on me and snowballs quickly.
PurpleIvy: Are you a Lady of the night? Talk of clients and all... If so let me know and I may book an appointment lol
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 18:31 26 January 2008

so that's not your @r*e then? You must be a Mr OBE! WHoops, should behave myself. Naughty OBE daring to be humorous here of all places.

You will be disappointed to hear OBE, that it isn't my profession. Not exactly sure what I should call myself.
aaron
aaron
joined 29 Nov 2007
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Posted by aaron, 12:42 28 January 2008

Good heavens, puts a completely new slant on being awarded an OBE ; )
Joel
Joel
joined 24 Jul 2005
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Posted by Joel, 21:19 28 January 2008

Makes sense to me too Eccentric.
Amalthea
joined 12 Nov 2006
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Posted by Amalthea, 00:56 29 January 2008

I'm struggling with the idea of acceptance. I don't know that I'll ever be at peace. My lack of energy this time of year robs me of things I want to do, has robbed me of some of my friends and robs me of the energy it takes to be "me"... to express myself.

Consider me the "bucking bronco." I will not go quietly!

I'm pushing myself to exercise right now, in the hopes that it will help me sleep better so I can beat this fatigue.

I admire the idea and those of you who are able to find peace in it, but I love being on the go and being active. I spent the weekend indoors, but today I had to go out after work... No place in particular, just to get a bite to eat. Went to two different restaurants and ate half of a meal at each -- had to get the stuff I was hungry for!
Suzie
Suzie
joined 26 Jan 2007
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Posted by Suzie, 08:07 29 January 2008

Amalthea, has you GP discussed graded excercise with you? This is very important. You should not push yourself too hard as you will hinder your recovery not help it. Pacing is also very important. This is how I have come to the position of acceptance I am at now. It took me years but I have finally got there and believe me it's like a weight lifted off my shoulders.
Amalthea
joined 12 Nov 2006
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Posted by Amalthea, 10:39 29 January 2008

Suzie,
My exercise is quite gentle. Mostly just walking in place to music. Lately, I've only managed 20 minutes, with the weekend being the exception. I was well-rested on Saturday and ended up walking in place for an hour.
Sometimes I do yoga, too. I don't do inversions, just really gentle and slow stretching.
You're quite fortunate if you have a GP who doesn't do more than nod when you say you plan to exercise. I had one who really motivated me, but I stopped seeing him because he was falling asleep in front of me at my appointments -- too overworked.

Heather
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 11:42 29 January 2008

Hi Heather,

when you say 'walking in place', do you do this at home, outside, inside, at the Gym? what? Just interested.

The ceiling in our new room is open to the roof and very high, I was wondering if I could manage to skip (jump rope?) in here!
Amalthea
joined 12 Nov 2006
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Posted by Amalthea, 12:34 29 January 2008

I do this at home... just marching in one spot. If you ever happen upon exercise DVDs by Leslie Sansone, that's pretty much the idea. I don't do the kick-backs or the knee lifts... sometimes I do the side-steps. Just so I'm moving. I lost 175lbs that way along with a high-fiber/lean protein diet. I gained 50lbs back, mostly because of the fatigue and aching of fibromyalgia.

Now I'm on an anti-inflamatory drug and I'm back to walking again, so I hope to get my weight back down to 155lbs.
eccentric
joined 25 Jan 2008
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Posted by eccentric, 22:54 30 January 2008

Thanks for all your replies, I think really unless I emigrate to a sunny place I'm stuck with this thing no matter how many light boxes I try. No more pretending to the boss I'm ok when I really want to be alone, I've gotta find a career/lifestyle that gives me less social contact when I need it.
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 08:27 31 January 2008

How often/how long do you walk Heather?

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