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anna
joined 25 Nov 2004
140 posts

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Posted by anna, 16:53 1 November 2005

hello there guys! as winter draws in ive decided to make myself come back here more often and get myself a good support structure going!

So, those of you that remember me will know that im now at University in Aberystwyth, Wales. Im studying countryside management HND which sees me largly working outdoors, which beleive me is every SAD sufferers dream :lol:

I have mondays 9-5 doing practical estate skills, in which yesterday i did directional tree felling, cutting down trees all day! i did feel the change, different times of light, the general darkness in the woods for most of the day particularly from about 3pm onwards, i started to slow down a fair bit. However i had an excellent chat with my teacher richard who wanted to know all about how SAD effects me and how it will need to be treated in terms of work. Hes concious of the fact that if im very very tired and using sharp tools they need to keep a good eye on me. So we talked and decided that if im tired i should tell them and have a bit of a rest for a bit.

Then 2 afternoons a week (not every week) i have a practical session which usually envolves a mini bus ride ouyt into the sticks and a nice wlak around making notes, identifying landscape features, different species and habitats etc. which is all good fun. But the University is being great about the SAD once again. I was too tired one afternoon to climb up Cadar Idris a local mountain which was really crucial as i have an assignment based around the trip that is 50% of the marks for the module. They have aranged for me to do a different assignment instead based on one of our other visits.

My lectures are long slogs, especially days like today where i had 5 hours straight of lectures, and the essays are really really hard work! but the most important thing is im having fun most of the time and have some good mates.

Ive been in touch with the universities disability officer as suffering from SAD and depression means that i qualify as disabled. Ive been 'green carded' which means i get acess to special computers around the university and i get special measures for dealdines and exams, like extra time and being able to use my light box during the exam. I have also applied for DSA- disabled students allowance which means i will get money to fund things like my light box, laptop, printer, text books, and for the university to supply me with a notetaker ( a real person who comes and takes notes in my lectures) and for me to be able to see a mentor 3 times a week!

Sooo what im trying to say is, if your at university make sure you tell them about your SAD i cant beleive how seriously they are taking it here, they ignored me when i told them about my SAD at my 6th form /School.

things would be perfect here if it wasnt for the slight hiccup this weekend i had with a couple of my mates! im sure it'll all blow over soon tho...
nickyblue
joined 20 Jan 2005
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Posted by nickyblue, 17:49 1 November 2005

That's great to hear that your uni is taking it so serious! I've just started my MA and I have told them all about it. Some of my teachers aren't very understanding but the student support services are being really good and it helps just to know that someone in the building is aware of the problems and can mediate for me if needs be! I hope you feel better!x :)
Linda
Linda
joined 15 Dec 2004
997 posts

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Posted by Linda, 21:22 2 November 2005

Anna, it's great to hear from you, and reading your message really cheered me up. Is this the same person who was writing to us last winter (LOL). Sounds like you've found the ideal subject to pursue in order to manage your SAD, and wow, look at all the support the university is giving you. It must feel like such a relief to have the SAD taken seriously. I'm really happy for you! Please keep in touch here and let us know how you're doing, and remember if the days are dark and you're feeling rough, we are here to listen and understand.
Best wishes,
Linda.

Anonymous
joined 4 Dec 2008
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Posted by Anonymous, 00:36 3 November 2005

Hi Anna

It is great to hear that you are getting such good support. Unfortunately when I was at uni I got no support at all, and ended up getting kicked of my degree. I didn't feel depressed exactly, but I had all of the other symptoms that I now attribute to SAD. Nobody wanted to help me, because I didn't have an explainable reason to be the way that I was at the time. Sadly, even working outside all day was not enough for me to achieve complete remission in the UK, but it did reduce the severity of my symptoms.

Coincidentally, it was a botanist who studied at Aberystwyth that inspired me to start my degree in environmental protection and conservation management. I did not finish the degree, due to not being able to do the coursework and exams. However, I did gain a wealth of knowledge exceeding the content of the degree, during my summer holidays working for Hampshire Wildlife Trust. I cannot remember hardly anything from my lectures, because I was pratically a zombie during term time.

Anyhow, good luck with your course, and don't be affraid to ask if I can be of help to you, if you need some info on countryside management.

Joel xXx

Anonymous
joined 4 Dec 2008
46746 posts

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Posted by Anonymous, 23:02 6 November 2005

Hi I have just read your post...I am glad your uni is being so supportive.

I just wanted to remind everyone that if you have been diagnosed with SAD for over a year, or it is likely to recur and has a substantial adverse effect on your day to day activies then you may be covered by the Disability Discrimination Act 1995.

The DDA gives you rights in employment, services and education and protects you from discrimination from organisations. You also have a right to have reasonable adjustments to help you work, this may be having a light box at work or during exams.

if anyone is having problems let me know or contact www.drc-gb.org for advice
sal2612
joined 27 Aug 2004
63 posts

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Posted by sal2612, 11:02 7 November 2005

My tutors are sympathetic and would allow me longer deadlines if I really need them but I dont get any other special treatment. I have given up getting an official diagnosis as my local mental health concluded that "we think you have the disorder but not strong enough to warrant anti-depressants so we're not going to diagnose you". People keep saying 'you dont need an official diagnosis if you're treating yourself with light therapy' but I'm missing out on these extra benefits without anything official.
anna
joined 25 Nov 2004
140 posts

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Posted by anna, 11:14 9 November 2005

i know what you mean Sal.

i never got an official diagnosis from my docter at home.

i tired to get him to commit to it, but all he would say is 'yes your probably right, you probably do have it.' which is a fat lot of good.

however i go to a psychologist (or did at home) and he agreed with me that my symptoms are winter reltaed etc.

the way i seem to have got around this is that im classed as disabled because i was going to see a psychologist and im on anti-depressants. on my forms i put 'possible SAD diagnosis' as my docter seemed to think i did had SAD but would never commit.

the university sees it as 'yes she does have SAD' and my psychologist wrote a letter of evidence for my DSA application saying that i have mentioned SAD and he would agree that i have it as he has seen the change in me during the winter yada yada.

so, i kind of have a diagnosis but not fully :roll: which is wierd.

but the university see it as enough evidence to beleive me so thats enough for me. plus my new docter seems to be ace- i told her that i think i have SAD and that my pshycologist and docter tended to agree and she seemed happy with that. althuogh she asked why the hell i was on citalopram all summer. i told her the docter hadnt fully commited to a SAD diagnosis and had made me keep on the citalopram.

she seems keen to get me off the drugs in the summers so hopefully this might finally give me a full diagnosis!

bah, long explantation!!! anyhoots, i posted off my DSA application yesterday, so hopefully the ball in is motion!

i spent the weekend at home in birm ingham, after ending up in A and E twice last thursday. my asthma got really bad, after i got a cold, and i ended up on a nebuliser, after having blood tests and xrays and all sorts!

Posted by Seasonally Apathetic & Disillusioned, 11:39 9 November 2005

I was going to write quite a long reply, but I will keep this shortish and to the point.

Any illness/condition that affects your quality of life, is a disability. Depression is a disability in its own right. You should at least be able to get supporting evidence from your doctor, if necessary, in the form of a letter - stating that you have a history of depression, and that it can significantly affect your academic performance etc.

Despite getting a letter from my doctor, my uni took the stance that I shouldn't have been studying unless I was in a fit enough state. Fortunately, more disability rights legislation has been implemented since then, so unis should now be a lot more understanding, and offer you more support.

Good luck with your studies.

Joel xXx

Anonymous
joined 4 Dec 2008
46746 posts

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Posted by Anonymous, 00:43 16 November 2005

hi, I've been at two unis, UCL were so unsupportive, compared with APU, but with the DSA, it is the local authority who controls what they pay for or not. Cambridgeshire LEA will not pay for lightboxes, as they say that to get any support for a mental health problem, I need a full diagnosis, and even though I have had issues for 7 years, my GP will not refer me.

When I lived in London, I was on a waiting list for cognitive behavioural therepy, for 9 months, get to the front of the queue, and I have to move.

Ask my new GP in Cambs if I can go back on a list here, and she tells me not to bother as the waiting list here is 2 years. I have given up on the NHS and medical professions.
siddy
joined 22 Jan 2003
674 posts

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Posted by siddy, 07:21 16 November 2005

Hello

I wouldn't give up just find a doctor who gives a f--k. A lot of doctors are ignorant and that is a fact.

I wrote to my g.p's and asked if (in a slightly sarcastic letter 8) ) anyone actually knew what sad was. I recieved a polite reply from one of the practice doctors that of course they all did! Anyway the upshot is I visited the doctor who replied as I felt they had to take me seriously after writing the letter and they do. There are always other g.p surgery's so don't give up if you don't feel you are getting the support.
anna
joined 25 Nov 2004
140 posts

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Posted by anna, 17:06 11 December 2005

my assessment was last thursday!

Its excellent, im goingt to have so much support!!!

the officer bloke has suggested:

*a digital recording kit for lectures and visits
*a note taker to take notes for me in lectures (as in a real living person)
*mentoring for an hour a week- this could be split up however i want it.
*laptop
*printer
*software

now i already have the latter three, so all i have to do is provide reciepts and hey presto they'll give me the money for them.

how ace is that? life is going to be so much easier now.

also, i htuoght id post up a couple of pictures for you all of the veiw from my bedroom window, and also the beach down in town. Its sigths like this that has made life so much more amazing since i got here. When yuor spending every day looking at veiws like this wherever you go you can't help but smile and vow to make the most of life.

http://img.photobucket.com/albums/v491/phonicsgal/SA500038.jpg

http://img.photobucket.com/albums/v491/phonicsgal/SA500016.jpg

today has been a good day. i spent most of my time cooking a full christmas dinner for 6 people using the smallest oven ever! then we all sat down and ate in the kitchen like a family, wiht crackers and smiles all round. then we washed and cleared up together, it was really lovely and will last with me forever. Then i went for a quick walk up to the stables next to my block, gave a couple of horses a stroke and came back. Since then ive sat and whatched the sun go down over the hills listening to a lovely album. My desk is against my winodw so i can make the most of the bounties ful of sunlight i get in my room and to cheer me up when im finding work hard.
Julie in Sussex
joined 21 Jan 2003
541 posts

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Posted by Julie in Sussex, 20:38 12 December 2005

Superb photos Anna!

And great news on the things you are able to acquire to help you with your studies ... so someone, somewhere understands SAD, this is progress! My youngest was allocated most of the things you have, except for the mentoring, to help him through Uni with his huge problem of dyslexia ... but, that too was a bit of a battle. Such a relief isn't it when someone says, "ok, we understand, now how can we help you"!!!
gailx
joined 4 Sep 2005
17 posts

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Posted by gailx, 02:57 13 December 2005

HI anna,

Wow you are very lucky... I like Joel went to Uni and they were the biggest bunch of to**ers one could find. They even rejected a doctors note of cronic fatigue...!!!

You see in the summer, I am rather a kick ass get it done type person, I stand my rights and dont get pushed over easily.. And in the winter im a complete and utter whimp! They were like a pack of wolves in the winter, they must have smelt the anxiety setting in... LOL!!!

Hey but I got there, dispite they made me re-sit and re sit and re sit till my ass was grooved on the chairs... Maybe I still have the bite of a cha-wow-wa in the winter...... (he he im making myself laugh...)

Good luck with your degree and let us know how you get on!
LOve Gailx
fernando
joined 4 Dec 2005
10 posts

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Posted by fernando, 14:27 13 December 2005

wow, those photos are quite something.

My present uni offers no official help for my SAD as it is not diagnosed, and neither with depression even though that is slightly,

luckly my dyslexia tutor does a lot of time planning and motivational stuff with me, and she knows that winter is BAD for me.

I'm stuck in the library at the mo, and it is already getting dark, although I did manage to get into college today. I slept though 2 of my 3 alarm clocks, which is better than usual.

I try and get my folks who I live with to wake me up, but they say that I am an adult, and I should be able to get myself up.

Being a child and being woken up was great.

Maybe I should make my bed more uncomfortable.

I do drink a pint or two of water before I go to bed, so in the morning, I have to get out of bed to use the loo. (sorry for being graphic, but It does help, and may help others!!) On the other hand you have to time it carefully, or else you wake up in the middle of the night.

Anyway, enough of procastination,
back to the essay

xx
siddy
joined 22 Jan 2003
674 posts

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Posted by siddy, 18:15 13 December 2005

I don't know if the Romans first used 'drinking quantities of water' to act as an alarm call to get them up for an early battle. Could be American indians........................... :shock:
anna
joined 25 Nov 2004
140 posts

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Posted by anna, 01:06 15 December 2005

thanks for the compliments on my photos, im quite proud of them. took some nice ones of sunset last night too.


Im really down tonight. my healths still taking a battering.

Its been 7 weeks now and im no better, if not worse. I cant stop coughing and its seriosuly difficult to breathe. i ended up at a and e again monday night, and had to stay for 3 hours whilst they did blood tests, x-rays and put me on a couple of nebulisers.

Its started to get me down quite alot, its really hard looking after yourself when your ill for a few days, but 7 weeks is a whole different ball game. Ok so i guess its like this for alot of single people etc, but id only left home about a month before i got ill, and was only just getting used to being my own boss and my own responsibility.

I find it hard to decide wether to go to university or not. Because of the length of time ive been ill, and the closeness of my lecture theatre to where i live (only about 30 seconds walk) theres a pressure on myself to attend as i love the course and dont want have to resit next year. Also understandibly my house mates have grown tired of my being ill. Some of them even get annoyed with me for coughing, its like they think im putting it on or somthing. Which i most definately am not. I feel a huge pressure from them to either get better or atleast pretend im better, which means i seem to have cut myself off from pretty much everyone except dylan my warden and mate. He stayed with me at the hosptial on monday night, and was such a star.

Im alone in halls at the moment because its the last week of term and lectures are over. So either people have already gone home or are out getting drunk to celebrate. they asked me to come, but i had to refuse as however much i want to go i know it isnt wise putting myself in a hot smokey environment when i was in casualty 2 nights ago. they didnt seem impressed that i wasnt going. but theres not alot i can do.

id love to be at home right now, where i can relax etc (although not for long as i have two extended assignments to hand in before xmas eve) but i have to stay in aberystwyth for a couple more days becasue i have to see my docter about my asthma. According to the hospital i need extensive tests such as alergy testing and seeing a respiritory consultant as they can see that im very ill, but theres no obvious reason for it.

Ive got an appointment with the doctor tomorrow, hopefully she will be good and take things as seriosuly as the hosptial were.

Im so fed up, and im worried im getting depressive. Id been so good since i got to uni, i jhad nothing to bring me down, but now after 7 weeks of being really ill i just want to crawl into a ball and dissapear. I so dont want to get into that pattern again, as it wont be easy at university if im depressed.

needing lots of hugs.

anna

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