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Posted by Briana’s Mum, 09:06 30 January 2008Hi
My Daughter is 9, she has SAD aswell as SID (Sensory Integration Dysfunction – an Autistic Spectrum Disorder of which high Anxiety and OCD symptoms (Obsessive Compulsive Disorder) are a part of). She has a Junior Bodyclock, this is her first full year of using it. Although she is doing SO much better we are really struggling at the moment. She is virtually impossible to wake up, she’s kinda like the duracell bunny, only she’s the one without the duracell batteries! This month is proving harder every day to get her to school. She just doesn’t seem to have ANY energy until about lunchtime. School don‘t really understand the full extent of what’s happening with her, they accept she attends when she can but I’d really like them to fully understand. I guess my question really is: is there ANYTHING else I can do to help her? She already has enough going on as it is and I just don’t like seeing her like this. Also do you find after a bout of illness that your SAD seems worse? Her other conditions certainly go into freefall after illness…just wondered if SAD can do the same. Sorry for the long post…any help would be appreciated. Thanks | |
Posted by PurpleIvy, 10:09 30 January 2008Brianna's Mum...
Do you use light therapy with Briana? A lot of people here not only use a dawn simulator, but also have a session of light therapy every morning. You can read more about this on the information section of this website. There is a lot of other helop there as well. If it's any comfort at all, there are many of us here that find December and January the worst months of all. Now that the mornings are getting a bit lighter, it's making things a bit easier. I start with light in September and usually tail off about the end of March, depends on what the weather is like really. I would suggest that you only try one approach at a time, that way you will know whether a change works or not. If you give supplements, do light therapy etc etc you won't know which has worked. Do you have good health professionals working with you? I presume if she is ASD then Briana will be on several peoples' lists. Let us know how you are getting on. This forum is very supportive to those with SAD and I'm sure you will find a lot of help here. There aren't that many people posting that have children with SAD, but there may well be some 'lurking' who would jump in when they see your message. Hope this helps you. | |
Posted by Me, 14:05 30 January 2008Well I must be the lurka.....LOL
Ive had SAD since I was about that age, although then it didnt have a name. My family were pleased that I slept till dinner time at the weekends, but gettin up in the mornings for school was hard. I suppose SAD and combined puberty changes make it ta terrible time. As I said, I didnt know what it was and just accepted it as me - not even knowing anything was wrong. I just found it hard to keep friends, they didnt understand me. I found it hard to learn stuff during the winter, but come spring and exam time, I was fine. I now know that i have a high IQ, unfortunately my SAD camoflaged this, so I was in classes that I could cope with in winter. However the same class in the spring.summer time was grossly easy, but because I hadnt kept up with the other class i couldnt change groups. I used to feel frustrated sometimes. My son also seems to be suffering from mild SAD. His teachers have noticed for a few years running that he doesnt cope to well with stress, and is brought to tears easily. He looks washed out, and gets frustrated easily. In a few weeks I know he will be fine. Have a word with the teachers, and get him to move a a table near the window. Make sure he gets out at lunchtime. A good well balanced diet. Exercise to get rid of that excess energy ( I got through it at that age by doing cross-country running)is also brilliant at raising the feel good hormones in her brain. Get some help from the doctor. Im sure I got a couple of sheets of info about children and SAD from SADA some years ago. I gave a copy of it to my sons teacher this year so that she could keep an eye on him. Ive still got it somewhere, but i dont suppose SADA would be overly impressed if I copied it. I'll dig it out and have a look to see if there is anything interesting in it. A light box may well help if SAD is diagnosed. If you can get her to sit still long enough. Perhaps in front of a computer, not the best idea I know, but hey it might keep her attention for longer. Hope this helps Me x | |
Posted by Briana’s Mum, 14:51 30 January 2008Thank you both for responding, just knowing there’s people who understand, helps.
To Purpleivy: unfortunately we don’t have a team of health professionals to help, because basically this strain of ASD is unknown in the UK! Our Doctor is useless…when I took her to the Doctor last year to explain my concerns re. the SAD his only response was ‘What do you expect me to do about it?’ Helloo…that’s why I’ve brought her here, everything I’ve read says ‘consult your doctor before using any light therapy products for diagnosis’! So it’s basically me, Briana and hubby, oh and our ASD support group in the States. To Me: It takes me all of my time to get her to school at the best of times, part of her ASD means she has no concept of time. I have to watch her constantly. I would like to try the lightbox but we REALLY don’t have time in the mornings, which I gather is THE best time to use it? Would it have any effect is she used it after school (pardon my ignorance)? She does already sit next to the window, that’s one thing at least the school are doing!Unfortunately she has to come home for dinner (and we only JUST manage that) because she can’t handle a full day at school and she can’t run, bless her, because her body doesn’t understand where it is half the time, she tries, but it’s all arms and legs. I’m not making excuses for her, just trying to explain what we are up against. I guess at least we’re over the hill now for this year, the changes in weather create all sorts of problems for her anyway, her brain doesn’t accept change easily, in the winter she’ll wear shorts and sandals and in the summer she’ll wear buttoned up coat, boots and scarves! It all creates alot of havoc for her to deal with. Thanks to you both for listening and letting me offload, appreciate it. Sharon | |
Posted by Me, 14:59 30 January 2008Sounds like youve got your work cut out.
Best of luck flower Me x | |
Posted by PurpleIvy, 19:30 30 January 2008If you need to visit again Sharon, you may find it helpful. There's quite a good chance that there will be more people read your thread in the next couple of days.
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Posted by PurpleIvy, 19:30 30 January 2008If you need to visit again Sharon, you may find it helpful. There's quite a good chance that there will be more people read your thread in the next couple of days.
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Posted by Me, 18:35 31 January 2008Sharon,
i meant to say the same as Purple Ivy. Unfortunately a screaming child in the background forced me to send it quickly. Didnt mean to sound curt.... If you have any SAD questions, Id love to share my views to help, as would others. take care Me x Me x | |
Posted by Me, 18:47 31 January 2008Sorry...
Brains working slower than my fingers.. - I should be used to it shouldnt I lol Me x | |
Posted by Briana’s Mum, 20:17 31 January 2008Thanks ladies
When she’s having ‘one of those days’ which she had all day Tuesday/Wednesday morning, I basically cut her some slack and don’t even bother going through the energy-draining struggles to get her to school. Am I doing the right thing here? I see it this way, if she can’t even get out of bed without a monstrous struggle what use is she going to be at school? I don’t encourage her to stay in bed however, I try to engage her into finally getting dressed and around lunchtime take her a little walk (she seems to finally snap out of it around 12). She wants to shut all the curtains and have all the lights on, I try to reverse that… Since having the dawn simulator thankfully she hasn’t gone through the severe depression she had Winter 2006 (she was on the verge of a Sensory Breakdown that year). She admitted a few months ago, she had thought of getting a knife and stabbing herself, she really didn’t want to be alive, she hated everything including herself, the only thing that stopped her was she knew I would be devastated! We are slowly sorting out the problems one by one, it’s a bit like peeling an onion, you know, you never know quite what you’re going to find in the next layer! I try to keep her close by. She also didn’t want to eat, she didn’t want to go out, she only wnt to school in the pm, she didn’t want to see any friends, she basically became a recluse. So I’m happy that this year hasn’t been so hard for her. Anyway thanks, Sharon | |
Posted by Linda, 20:43 31 January 2008Sharon, is there no way you can try a light box for 20 minutes or half an hour in the morning? Why is there no time for it? The apparent consequences are that your daughter is missing school and has threatened in the past to kill herself. Surely it's an experiment that is worth a try. If the light doesn't seem to help, then that can be a clue you can use to guide you to look at other treatment options; please do come here and let us know.
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Posted by Briana’s Mum, 21:19 31 January 2008Hi Linda
As I said, there was SO much going on last year, that was when she felt so desperate, her admission with the knife only came out a few months ago. Thankfully she is alot more settled now. We now know what diagnoses we are dealing with. It’s the lethargy that is causing most of the problem with getting to school, she’s kinda like a little rag doll. As for the lightbox, I would love to give it a try, if you think it would make a difference…they are kinda expensive, would probably be best to wait until September and buy one on a trial basis first. Getting her ready for school involves a series of timers and alot of patience, once out of bed she’s a wanderer, you can’t pin her down in one place, she has to be followed and re-directed to whatever activity you require her to do. The guy at OutsideIn thought the Dawn Simulator would be enough for a child so we were kind of guided by that info. I have to keep her asleep as late as I can because she has a very erratic sleep pattern (sometimes she can stay awake til 2 in the morning, her brain doesn‘t understand the necessity for sleep). Does that make sense? If I can figure a way of pinning her down then we can certainly give it a go. Thanks, Sharon | |
Posted by Linda, 21:44 31 January 2008Most companies that sell light boxes give you a month during which time you can send it back if it isn't working. You should know by a couple of weeks how much it is helping.
It sounds like your daughter's body is really struggling in some way. If you ever want to talk about approaches involving holistic health and healing, you are welcome to talk in the Nutrition Info thread. Can I just ask if you've looked into food allergies? Best wishes, Linda. | |
Posted by Briana’s Mum, 10:47 1 February 2008Hi Linda, we already use holistic therapies and have done for a long time and we have already sorted her intolerances. It took me basically 18 months or so to finally get on top of EVERYTHING that caused her problems. She is pretty much intolerant to ANYTHING artificial, particularly colours, preservatives, sweeteners, flavours, they make her hyper-active. She’s lactose-intolerant, fructose-intolerant, can’t take most medicines because they contain so much crap either and she’s definitely allergic to penicillin. Then the autistic thing comes into play which means certain textures, flavours, etc. actually make her choke or throw up! She’s seen a dietician who was happy with our eating plan. It takes forever for her to gain weight and she always loses loads after a bout of illness. This is kinda why I asked about the lethargy bit ’cos she only really suffers with that between September and February, with December/January being the worst. I’m trying to find out if it’s connected to the SAD or her ASD…
Thanks, Sharon | |
Posted by Linda, 15:53 1 February 2008I'm sorry to hear that you are in so much difficulty with your daughter. It must be frustrating and exhausting. I know a Yahoo list that supports parents who have chosen to chelate their children in an effort to remove mercury, which some believe is linked to autism. Common sources are vaccines, amalgams (present in the mother during pregnancy, if not in the child) and contaminated fish. If you are interested I can give you the URL.
best wishes, Linda. | |
Posted by Briana’s Mum, 16:01 1 February 2008Please do…it’s worth a look, thanks, Sharon
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Posted by Linda, 16:28 1 February 2008 | |
Posted by Linda, 12:30 2 February 2008Another link you may find helpful Sharon:
"Don't Believe the Hype -- There's Much More to Autism Than Genetics" http://articles.mercola.com/sites/articles/archive/2008/1/31/don-t-believe-the-hype-there-s-much-more-to-autism-than-genetics.aspx | |
Posted by Briana’s Mum, 13:25 11 November 2008Hi everyone
Thought it easier to add to my previous Thread rather than start a new one! A kind of an update if you like as well as to ask another question. As soon as the weather changed around Springtime, my Daughter literally sprang back into action. Her lethargy and lack of appetite and general ‘wakefulness’ are definitely connected to the SAD rather than her ASD, we have noticed than since the clocks changed recently she has reverted back to that pattern. She has missed several days of school literally because she hadn’t even got the energy to get out of the house! I am in talks with her school to see what they can come up with, I’ve done my bit, I’ve tried EVERYTHING I can think of (well nearly…). She currently has a Junior Bodyclock, if I bought her a Lightbox, can anyone tell me if it has helped with the lethargy, if so, to what degree? A lady at Lumie suggested if we got one to use it as soon as she wakes? Any thoughts would be appreciated. Sharon | |
Posted by Me, 17:56 11 November 2008When I use my lightbox I get a lift as if it is spring again. However, I now need so long in front of it that I dont find it convenient for my lifestyle -always on the move!!!
If Spring made her feel like a different person, you could always try a lightbox - nothing to lose. Im sure that Lumie has a 30 day home trial period - perhaps thats the place to start. I also have has SAD since I was about her age (although I didnt know what it was then!), and Im beginning to think that my 11 year old is struggling - hes been strange since mid Sept. He has been getting awful cluster migraines every day since then and so soooooo lowwww. I read that they can be due to a serotinum imbalance aswell so.. there could be a link! Regards Me x | |
Posted by Donna, 04:52 12 November 2008Hi Briana,
In answer to your question on whether or not we feel worse with SAD after being ill and the answer is yes. I was sick a couple of weeks ago and like a dummie I had my blinds closed so when I got out of bed a couple of days later, I then had to get over SAD again, so I got my light therapy box out and boom it vanished - thank God! I know now that the next time I am sick I either have to have the blinds open for the sun or have my light therapy box in my room with me. I hope this helps you. | |
Posted by Briana’s Mum, 17:40 14 November 2008Thanks Donne & Me for your input.
Seems the school are finally taking this seriously, they are now organising a multi disciplinary meeting with a view to seeing what they can do to help her! It’s only taken 3 or so years!!!!!!!!!!! They’ve agreed to her attending school just afternoons for now, so fingers crossed, we may be getting somewhere! | |
Posted by Me, 21:07 14 November 2008Brianas mum
Best of luck flower - to both of you.. Me x | |
Posted by Donna, 05:44 16 November 2008Hi Brianas Mum,
Maybe the school would let you bring in a compact portable lightbox for her. It never hurts to ask!! Donna | |
Posted by PurpleIvy, 16:28 16 November 2008Maybe if she''s only attending school in the afternoon, she could sit with her lightbox in the morning.
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Posted by Thrive Feel ALIVE, 23:42 20 November 2008Keep searching for the answers.
There are Solutions to all of Our Problems. Briana will be ok!! | |
Posted by Donna, 03:48 21 November 2008Hi Thrive Feel ALIVE,
You are absolutely right and by the way I love your positive attitude - KUDOS to you!! | |






