Light therapy tips for better sleep

My diagnosis.

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ClaireB
ClaireB
joined 14 Nov 2008
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Posted by ClaireB, 16:45 17 November 2008

Firstly thankyou Donna for offering me a lightbox it was very kind of you but I've come into a bit of money so I'll be buying one very shortly.

The doctors appointment didnt go well at all.

I told him I think I have SAD and he asked "Where on earth did you get that silly idea?"

I explained I can't stop crying, neglect my hygiene, feel very low...He basically said I was just lazy and we are all a bit depressed in winter EVEN THOUGH I said I was perfectly fine in summer. He even admitted himself he uses a light box. Cutting a long story short he said that I'd just have to learn to live with it. He prescribed some pills to help wake me up in the morning though.

So I've come back in tears. No one's listening to me. I cannot go on like this knowing I feel like this every winter.
Summer
Summer
joined 27 Nov 2007
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Posted by Summer, 20:45 17 November 2008

Hi Claire

Go see another Doctor!!! You don't have to accept his diagnosis!! To be honest though most doctors won't diagnose SAD until you've had at least two depressive episodes during the winter. If the depressive episodes form a pattern, i.e. only in the winter (or summer for summer SAD) then they are more likely to come to the conclusion that it is SAD. I have had an official diagnosis of SAD from my GP (around 15 years ago) but many people self diagnose and then do not get the help they need.

I'll say it again. Go see another doctor!!

Let us know how you get on. x
Donna
Donna
joined 28 Nov 2002
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Posted by Donna, 20:53 17 November 2008

Yes Claire,
Do see another Doctor as summer said! He shouldn't talk to you that way, was very very unprofessional indeed! Don't let him make you feel worse, how dare he!

Sorry but am so shocked at what he said to you. No doctor should be talking to patients like that. He needs to listen and be sensitive, especially as it takes a lot of nerve to get yourself there.

So do get help from another and do get that lighbox too to help you hun.

Let us know how things go.

I do feel for you sweetie xxxxx
ClaireB
ClaireB
joined 14 Nov 2008
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Posted by ClaireB, 21:04 17 November 2008

Thanks you two. I'm so so annoyed. He's put me on Dosulepin. He said that taking two before bed will help me wake up of a morning.. However on research, Dosulepin is designed to aid sleep by causing the patient to become very groggy. How are these supposed to help me wake up?? I said to him as well, I have no problems sleeping, soon as my head hits the pillow I'm asleep. But waking up that's difficult. Arrrgh!!

How do I see another doctor? What should I say to him?
Summer
Summer
joined 27 Nov 2007
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Posted by Summer, 22:13 17 November 2008

If your doctor is part of a large practice then just make an appointment to see one of his colleagues. I very rarely get to see my own GP and usually see someone else in the practice unless my own GP is available.

I have told this story before but when I first went to see a doctor about my symptoms he told me that I was either on drugs or Schizophrenic. As you can imagine I was really upset with his diagnosis and immediately went to see another Doctor who was really helpful and understanding. It was he who recognised that it was SAD as I had never heard of it at that time!

I stand by my first reply, go see another doctor. Just tell him/her how you're feeling, when you started to feel bad (i.e winter) and that you always feel bad in the winter. You could mention that you're not happy with the diagnosis from his/her colleague but sometimes they're not happy to go against the diagnosis of a colleague (especially if they are one of the senior partners in the practice). However, all a GP will do is pack you off with some AD's. Is that what you want though? I've found that visiting this forum, reading others experiences and picking up tips has been far more help than I would get from my GP anyway. The only assistance I've had from my current GP (who incidentally was not the doctor who diagnosed me) is a prescription for Prozac when I've needed it. They've never discussed any 'alternatives' with me. I've done all that research myself (with help from other users of this forum). I don't personally know of any SAD clinics in the UK but someone else might know of one that perhaps you can visit as opposed to seeing a GP again?
JohnS
joined 17 Nov 2008
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Posted by JohnS, 23:25 18 November 2008

Huge mistake Number 1: Never, ever, tell a doctor "what you think you have". That is their job, that is what they went to medical school for, and they dont like the patient doing their job for them.

If you go to another doctor as suggested and say the same thing you will likely get the same result. What you should do is tell them your symptoms. Let them make the diagnosis. Dont even mention SAD. If they dont offer a treatment plan you like or agree with, tell them you arent interested in that treatment and suggest what you want to try. If you still cant find agreement, find a new doctor. But never tell the doctor what you have.
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 09:42 19 November 2008

I disagree. If I hadn't pointed it out to my doc then it would be down as depression. He's great doctor and very very supportive in helping me manage the condition. He was rather skeptical when I told him that I thought the depression was seasonal. I was new to him then. ONce he had seem me at different times of the year, he understood that it was SAD.

I think every person and case is different and it's up to the individual. It's rather a blanket statement to say never tell your doctor what you think you have and if you are tactful in what you say, I'm sure they wouldn't regard you as doing their job for them.
JohnS
joined 17 Nov 2008
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Posted by JohnS, 14:07 19 November 2008

Their are exceptions to every rule. It is still a good rule. It doesnt sound like your doctor is one of the exceptions. He had to see you at different times of the year before he understood it was SAD. There is nothing wrong with saying you have certain symptoms at a certain time of year, that is just reporting your symptoms accurately which I encourage. It is saying "I think I have _____" that I am cautioning against.
Donna
Donna
joined 28 Nov 2002
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Posted by Donna, 17:01 19 November 2008

I knew I had SAD for many many years before I went to see a GP. I knew it was SAD because of the symptoms, being seasonal and because I know myself more than anyone else especially more than all the different GP's I see here and there about other things.

I think if you know you have SAD then it shouldn't be a problem mentioning to your GP that you think you have SAD. You can tell your GP that you have done your own research and feel certain its SAD. This is if you think it is SAD. I don't see a problem mentioning this to a GP then discussing it further.

Its helpful if patients can help themselves in any way. Then when you have a diagnosis, you can do things to help manage your symptoms. In the UK, the Government encourages patients to be expert patients to assist with helping themselves by understanding about their diagnosis as much as possible by taking control of their management as much as possible.

Gone are the days when patients used to see their GP and do what they were told even if the patient had concerns or disagreed. These days patients should feel in more control of their own lives.
paulst
joined 5 Oct 2005
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Posted by paulst, 17:20 19 November 2008

Imust admit,that I agree with purple,I told my doctor my thoughts about maybe having sad, I have found him very supportive, we investigated my condition and he agreed that there was a good chance I could be suffering from this illness. My treatment ever since has been excellent.


paul
Suzie
Suzie
joined 26 Jan 2007
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Posted by Suzie, 19:59 19 November 2008

I also agree.... I suffered from seasonal depression for many many years and it was only with the help of my continuous diary keeping and my strong suggestion did we draw the conclusion that I had SAD. I have also taken in my Winter Blues book to discuss certain methods of treatment that I would like to try and she has openly admitted to me that I know more about the condition than her. But since I have been going to see her it has encouraged her to investigate SAD further and find me 2 doctors who specialise in SAD who she will refer me to should I want it.

ClareB don't be too disheartened, like Summer said if they are part of a practice like mine you can always go to see another one of the partners. Start keeping a diary, its the best thing I ever did. Good luck x

Hi Paulst, nice to read you and Purple Ivy..... lovely to see you today, we shouldn't leave it so long next time x
Queinie
joined 3 Nov 2008
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Posted by Queinie, 06:36 20 November 2008

If I went to my doctor and said I had SAD or even said that I wa depressed he would tell me to get outside and walk.By the time I ralize I'm crashing I just don't have the energy or willpower to get out the door. I don't need a doctor to tell me I have SAD. I've really known it for years and this year when it hit fast furious and early I was terrified and decided I was not spending another useless winter. I bought a light box,and take a multi-vitamin with high doses of MOOD vitamins, 1000iu of Vit d twice a day and St Johns Wort 3-5 times a day. I have been at this for three weeks and am feeling pretty good.I have energy and am actually looking foward to Christmas, which is very unusual for me. My anxiety is pretty well gone (that was the worst part of it for me ).I say if YOU think you have SAD then you probably do. So do what you can to fight it. You have seen many options here. Just think positive and give each treatment about three weeks. Good luck:)
Donna
joined 31 Oct 2008
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Posted by Donna, 08:55 20 November 2008

Hi ClaireB,
This is the other Donna from USA (I probably should change my name) but anyway. First of all, you can try calling the family doctors in your area and see if they are accepting new patients and if they are, just have your medical records transferred from your current doctor to your new doctor. When you first see your new doctor just tell me that you believe you have SAD as you get these same symptoms every winter and just tell me exactly how you are feeling and if he gives you the run around, then try another doctor until you find one that is going to help you. Remember, the doctors work for you, not the other way around and you can fire them anytime you want to.

As I understand it, you have come into some extra money, so make the first step and buy a lightbox. It needs to be at 10,000 LUX - this is per my psychiatrist. You need to sit in front of it and be no more than one foot away from it. Distance is very important here. When you first get it, you may need to experiment with it a little as everyone is different. A half an hour is not long enough for me. I have to sit in front of it for several hours which I do while I am working and then I glance at it once every minute. Also, you need to do this every day for it to help and if at first if it seems like it is not helping, then try something different like sitting in front of it longer and just kind of play with it a little until you get a routine that works for me and finally lifts your mood. It took me about 2 weeks I think to get onto what would work for me which is to sit in front of it several hours a day every day.

Anyway, honey, good luck in your endeavors and let us know how you are doing and take care. Maybe this weekend if there is any sun in your area, you can get outdoors and maybe exercise a little.
PurpleIvy
PurpleIvy
joined 16 Mar 2005
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Posted by PurpleIvy, 08:56 20 November 2008

Nice to see you hear Paul, also lovely to see you yesterday afternoon Suzie. Makes me feel better to really feel that there is someone else that understands how I feel. DH is great, but his experience of it is limited to seeing how I am. he doesn't know what to do with me sometimes! No, we shouldn't leave it so long next time!
Trinny
Trinny
joined 16 Dec 2008
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Posted by Trinny, 23:37 17 December 2008

It seems to be a big issue, that doctors don‘t know about SAD. At least it has been easy to get a counselor for me. But next time I will have to explain to my new counselor that it‘s not a depression what does not let me to live but other symptoms. I think it makes it worse, when you are ill with SAD, you don‘t have the energy and strength to fight with ignorant doctors. You just stay at home, frustrated and weak.
Stained Glass Lady
joined 5 Dec 2007
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Posted by Stained Glass Lady, 19:49 18 December 2008

Since My Doctor said I have sad she has had atleast 20 or more people that have the same problem. But there is still not much in counselors in our area and the only one is not covered.
Amalthea
joined 12 Nov 2006
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Posted by Amalthea, 20:43 20 December 2008

I told my counselor that I had SAD. She asked if I'd ever been diagnosed, and I said, "I told a few doctors what I thought it was but they didn't seem to know much about it." She said, "Why do you think you have SAD?"

I said, "I get really tired every winter. My personality changes. I crave carbohydrates, and when I use a lightbox, it helps." She said to me, "I think you do have SAD."

Heh. So, now I have an "official" diagnosis, but it doesn't make much of a difference for me because I have been using light therapy to treat myself for several years now, and I started taking vitamin D when a dietician said it might be a good idea.

If I needed an anti-depressant, I would make sure I got it from a doctor that I trusted, and that would have to be someone who would agree to monitor me on it -- not just give it to me and aimlessly give me refills without at least asking if it's helping or not. These are things not to be taken lightly... have a friend or family member agree to let you know if they see any changes in your behavior or personality and see if that person can come with you to the doctor's office, too.

Sometimes these medications can cause changes that you are unable to recognize in yourself so it takes someone else to help you look out for yourself. Never hurts to have a buddy make sure you're OK.

Last year was my worst year ever, partly because I had a very uncaring doctor. I've found a new doctor and am also seeing a counselor and I feel pretty well this winter.

(I also learned I have fibromyalgia, so being in pain and exhausted made me feel 100x worse. Now that I have help with the fibromyalgia, I haven't had that feeling of dread and have only felt mildly affected by SAD this year)

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